Marquis de Saydrah

Because I’ve moved from thinking, “I’ve GOT to blog that!” to doing it.

Me and Disability (FAQ) June 26, 2008

I imagine that new readers of this blog may have some questions. On this page, I’ve attempted to anticipate and answer some questions relating to the blog’s frequent focus on disability rights and disability politics.

So, Saydrah, do you have a disability?

No. I am, as far as I can tell and for the moment, able-bodied and neurotypical.

Okay, then, what’s up with all the disability posts?

First of all, becoming a person with a disability is the only way to suddenly join a minority group, without warning, at any time during your life. Also, most people will eventually acquire an age-related disability. The alternative is to die young.

So, for all my fellow able-bodied and neurotypical folks reading this blog, a word to the wise: Support disability rights, support accessibility, and read some disability blogs. Chances are, you’ll make some awesome friends, and you’ll eventually benefit directly from increased access and civil rights for people with disabilities.

Secondly, I think disability rights, community living, and biodiversity acceptance is the last great civil rights frontier. Or, at least, the last great civil rights movement I’ll see in my lifetime. I wasn’t old enough to fight for the ADA or support bus sit-ins and boycotts in my home state when they happened, but there’s still a lot of work to do. I was born and raised an activist, and that means when I see a movement with the potential to fundamentally expand freedoms and rights accorded to people in my community, I’m going to get involved.

Thirdly and finally, I work in the disability field. That wasn’t the start of my activism for the aforementioned issues, but it’s expanded my opportunities to make a difference and challenge others to do the same. You may or may not be familiar with my employer, Disaboom.com, which is a social networking website focusing on the disability community.

By the way, this is the part where I emphasize that the views and opinions expressed on this blog are my own and do not reflect the views and opinions of Disaboom. Nothing here reflects an official or unofficial policy statement by Disaboom. This is my personal blog, which is not censored in any way by my employer. You’re welcome to ask me questions about my job and my employer, and I’ll answer honestly, but please don’t mistake anything I say for anything more than my personal opinion.

Oh, hey, you work for Disaboom? I love them.

Rad! Check out my Disaboom blog– it’s in the sidebar, under “my other blogs.”

Oh, hey, you work for Disaboom? I don’t like them.

That’s fine. You don’t need to like my employer to read my blog, any more than you need to like my hair color or Barack Obama to read my blog. However, I do really, really love my job (which is a new experience for me– sometime I’ll regale you with some truly awful stories from past jobs) and I hope that you will at least give Disaboom a fair shake before deciding you’re not a fan.

I have a blog/website about disability. Will you link to me?

Leave a comment on one of my posts, or shoot me an email. I’ll check it out, and if I like it, of course.

I have a question that’s not listed here.

Email me or comment on the post that raised the question for you.

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2 Responses to “Me and Disability (FAQ)”

  1. Gary Presley Says:

    Would you consider mentioning my newly-published memoir on your blog? I would be happy to exchange blog feeds as well.

    Seven Wheelchairs: A Life beyond Polio was recently released by The University of Iowa Press.

    The memoir is a history — an American tale — of my fifty year wheelchair journey after being struck by both bulbar and lumbar poliomyelitis after a vaccine accident in 1959. The Press says Seven Wheelchairs gives “readers the unromantic truth about life in a wheelchair, he escapes stereotypes about people with disabilities and moves toward a place where every individual is irreplaceable.”

    Other reviewers have called Seven Wheelchairs “sardonic and blunt,” “a compelling account,” and “powerful and poetic.”

    I hope you can mention Seven Wheelchairs on your blog. We all live different disability stories, I know, but perhaps if you find the memoir worthwhile, you might want to recommend the book to others who are curious about what polio or disability in general.

    Of course, the book is also available through Amazon and Barnes & Noble.


    Gary Presley http://www.garypresley.com
    SEVEN WHEELCHAIRS: A Life beyond Polio
    Fall 2008 University of Iowa Press

  2. Saydrah Says:

    Hey Gary,

    Thanks for the comment! This blog isn’t very active anymore, but I’d be happy to make a post mentioning the book, although of course I will make clear that I haven’t read it and am simply passing the information along in case it interests someone.

    By the way, as you can see from my little FAQ here, I work for Disaboom. If you’d like to send a copy of your book for review on Disaboom.com, let me know and I’ll send you an address and the name of one of the ladies who do our book reviews. I think that would probably be more useful for promoting your book than would a mention on my blog here.

    -Saydrah


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